RLEI

 

2019 - Vol. 13, Num. 2  
           
 

Intellectual Disability in Early Childhood: The Perspective of the Brothers and Sisters of Children with Down's Syndrome

 
      
  Paola Andreucci Annunziata and Camila Morales Cabello
   
  Abstract    
   
 

The study falls within the scope of Early Care and Intervention. It was proposed to contribute to the approach of intellectual disability (ID), from a systemic-family perspective, stressing the contribution of socio-family agents in the construction of the phenomenon. In order to do so, he gave voice to the brothers and sisters of children with Down’s syndrome, investigating their socio-cognitive representations (conceptions, attitudes and feelings) about themselves, his brothers and sisters in ID situation and his role in the family. The qualitative methodological design used in-depth interviews oriented by thematic script as tools for collecting/producing information, based on family-centered approaches. The study group consisted of 18 Chilean brothers and sisters and 2 immigrants attending three stimulation and early care centers in Santiago of Chile. The results point to defined conceptions about ID, attitudes ranging from a temporary distance to a greater degree of understanding of the phenomenon, initial feelings of frustration, grief, rage and personal and family invisibilization and professional projections associated with ID.

 
   
  Key words  
   
 

Intellectual disability; Early childhood; Brothers; Sisters; Family.

 
   
 Complete Text  
 
  Full text in Spanish, PDF  
 
  Reference  
 
 
Andreucci, F., & Morales Cabello, C. (2019). Discapacidad intelectual en primera infancia: La perspectiva de los/as hermanos/as de niños/as con síndrome de down [Intellectual disability in early childhood: The perspective of the brothers and sisters of children with down's syndrome]. Revista Latinoamericana de Educación Inclusiva, 13(2), 191-208.
http://dx.doi.org/10.4067/S0718-73782019000200191